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Hundreds are set to gather for a truly special, ‘bright tie’ event to celebrate the life of Jaxon – a young Notts boy - on what would have been his fifth birthday.

The charity ball organised by Jaxon’s mum, Kaytee Jones, will also raise vital funds for Midlands-based children’s hospice, Rainbows.

Kaytee – known by many as thenursemum on Instagram – began documenting her life with Jaxon, who had complex medical needs, in 2017. Over time, the account gained a huge following and Kaytee was interviewed by several national publications and broadcast programmes including This Morning and Victoria Derbyshire, as she fought for Jaxon’s support rights.

Sadly, in May 2021 Jaxon passed away aged just three years old and Kaytee’s world collapsed. A year on, Kaytee is determined to ensure her son still has a fifth birthday celebration and raises awareness for the work of Rainbows.

Jaxon’s Birthday Ball will take place at Colwick Hall Hotel on the evening of Friday, 19 August offering a dazzling reception, fine three-course meal along with DJ and entertainment. It is a chance for anyone who was inspired by Jaxon or who was moved by his story, to come together for a wonderful cause.

“Jaxon’s birthday is one of the most challenging days of the year,” Kaytee said.

“Every day is challenging but knowing on a certain day I should have been celebrating another year of his life, watching him grow up and go through the stages and changes of childhood but not getting that, leaves it as a day to be dreaded.

“This year will be the second birthday he's not been here for after he passed away aged three. I've vowed to turn this day of dread into a day that he will be celebrated regardless of my feelings. I will use what he taught me and be who he made me to raise funds for a charity close to our heart."

Currently, the cost to run Rainbows is more than six million pounds a year and relies mainly on donations. With the rising cost of living, and energy price hikes, it is likely the figure will increase.

Since Jaxon’s passing, Kaytee has been able to access support through bereavement counselling – something other parents facing grief can access.

She added:

“Rainbows really got us through the hardest moments, and provided Jaxon with a place he could be a happy, little boy and I could relax knowing he was being cared for. I want to ensure that other children with life-limiting illnesses and their families are also able to benefit from Rainbows’ services.”

Tickets are still available for the ball, as well plenty of opportunity for businesses or individuals to show their support through sponsorship or donations.

For more information, please visit: Jaxons Birthday Ball (@jaxonsbirthdayball) • Instagram photos and videos

For those unable to attend the Birthday Ball, but who would like to contribute to Rainbows in honour of Jaxon, visit: Kaytee Jones is fundraising for Rainbows Hospice for Children and Young People (

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