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Children's cancer charity in Leicester launches unique funds

A national childhood cancer charity based in Leicester is launching a unique funding programme for research into rare and under-funded cancers affecting children – including the UK’s only dedicated fund to support research into the health of cancer survivors.

CCLG (Children’s Cancer and Leukaemia Group), which is hosted by the University of Leicester and based at Leicester Royal Infirmary, is launching a new Research Fund Programme, which will allow families and members of the public to support research into childhood cancer, with the benefit of fundraising support and expertise from CCLG.  

Two of the funds will raise money for more research into rare and under-funded cancers affecting children. The third will focus on the health needs of children who have survived cancer, known as  "late effects" of cancer, and will be the only dedicated fund in the UK to support research into this area.

Ashley Gamble, Chief Executive of CCLG, said:

“We’re proud to be launching our Research Fund Programme, which we hope will raise a significant amount of money for much-needed research into aspects of childhood cancer which don’t get as much recognition as they deserve.

“We recognise that many families want to support research into childhood cancer, whether that is in recognition of successful treatment, the support their child received during treatment, or in memory of a child lost to cancer. With our Research Funds, family and friends can fundraise for the cause of their choice, where 100% of donations goes direct to the specific fund.

“If our Research Funds Programme is successful, we hope to extend it in the near future, launching further funds into specific diseases and areas of work to boost vital funding for research.”

The new funding programme will complement CCLG’s existing Special Named Funds programme, which allows families to create a fund in memory of their loved ones. The Special Named Funds Programme has more than 30 active funds and raised more than £450,000 in 2018.

Dr Vicky Forster, a cancer survivor and cancer research scientist at The Hospital for Sick Children in Toronto, said:

“I am very passionate about advocating for more research into the late effects of cancer. Only now are enough people like me living to an age where we can effectively be studied in large numbers to find out what happens to us as a result of our early treatment. Hopefully, this will lead to better understanding and provisions for childhood cancer survivors and also ways to prevent or reduce late effects for children currently being treated for cancer and those who will be treated in the future.”

If you, or anyone you know, would like more information about CCLG's Research Fund Programme and how you can fundraise for them, visit www.cclg.org.uk/researchfunds


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